Peter’s Personal Blog
Peter is a nine-year-old boy diagnosed with KAT6A. Despite being nonverbal he is literate and enjoys typing on his keyboard. Below you can read his personal blog. His blog entries are unedited and will be updated frequently.
January 16, 2018
Hi kat6a parents,
My name is Peter. I have many disabilities. I like to dance, read books, hear happy songs and ride my bike. I feel happy because my family is always trying to find a cure for kat6a. I like to color rainbow. I like to watch true stories. The universe is full of bogus yet no one minds. The goal of my life is to joyfully teach human history.
January 18, 2018
My experience with skiing is truly unique. I established a real understanding of the height of the hill. I feel joyful when I go down the green hill. The lift is dangerous because the feet don’t touch the floors. I like the magic carpet because it’s the safest real way to enjoy skiing.
January 23, 2018
Greetings from the rare disease foundation,
I want to thank everyone for the happy threads. I am delighted to read your joyful replies. I would love to meet Sam, I want to try hiking in Maine and to eat fish.
January 29, 2018
Regards from West Nyack,
I am grateful for the joyful reward received at the talent show. I had enjoyed the great experience, joy, reaction of the people and the great responses.
I believe that i never saw a moose. I personally hate that the extinction of the moose will tremendously ruin the earth. I truly would like to see a moose.
February 9, 2018
Hi from your friend Peter,
Riding the lift was truly rewarding. I experienced the height of the blue hill, green hill, orange hill and understood the dimensions. I love to hike in the iced forest. I read books to explain our true happiness, real joys and ultimate rewards. Life is very erratic. The people I know try to find happiness.
I really enjoyed meeting all the kat6a families, doctors and the excellent subjects. I really enjoyed the interactions between the youngest kids, researchers and the experience of imagining myself being a renowned innovator.
February 12, 2018
I enjoyed playing the piano at the talent show off West Nyack Elementary School . I liked the unexpected support of the teachers and friends. I hope that I’ll be able to talk next year because i would love to sing the national anthem. Hearing the children joyfully singing was rewarding. I’m hungry now so I’ll go to the kitchen to eat lunch.
Hugs from Peter